9TH SERIES OF LIVE SHOT CHARITY TEES FEATURES H2O & BACKTRACK. BOTH H2O & BACKTRACK SELECTED THE FABRY'S WALKABOUT TO BENEFIT FROM IT. SHIRTS ARE AVAILABLE FOR ORDERING AT WWW.COLDCUTSMERCH.COM & ONLY TILL MAY 31ST
March 1st 2013, Courtnay Midkiff (aka Smacman) embarked on a backpacking trip from coast-to-coast , walking through 10 states and nearly 3000 miles of the United States to the Pacific Ocean in California. The sole purpose of this trip is to raise awareness of a chronic disease he suffers from, Fabrys Disease.
Fabrys is a very rare genetic disorder found in only 1 in 40,000-to-60,000 males. Fabrys can affect males and females of all ethnic and cultural backgrounds. Because of the progressive, destructive and potentially life-threatening nature of Fabrys, early identification, evaluation and diagnosis are critical to the health and well-being of individuals with this disease.
Smacman hopes to raise $1,000,000 to support an organization, The National Fabrys Disease Foundation (“NFDF”). The NFDF is dedicated to supporting the Fabrys community. Their five primary functions are: assisting with Fabry disease education, facilitating Fabry disease identification to improve Fabrys recognition and diagnosis, providing various forms of assistance to individuals with Fabry disease, supporting Fabry disease research and promoting advocacy for Fabry disease issues.
“This backpacking trip will, I believe, provide dual benefits, both of which would be positive for the Fabrys community. On one hand, I intend to raise money to help further research and development of treatment; and on the other hand, I expect to give those diagnosed hope, by showing that just because we have Fabrys, doesn’t mean we can’t be as active as anyone else. Living with Fabrys has made me a stronger person and taught me to never give up or quit anything.” – Smacman
H2O would like to have all proceeds of their Live Shot Charity Tee benefiting Smacman to support his journey & cause.
https://www.facebook.com/pages/The-Fabrys-Walkabout/139339526238705click here for link